The Double-Edged Scalpel

Eternally in a hurry, I uttered my standard-issue, “No, I’m sure it’s all fine. It’s just the typical surveillance testing,” excused myself from the call, and walked quickly toward the hospital.

Five hours of testing later, and I would find myself deflated and wondering if that statement had jinxed things, as I dressed and gathered the paperwork to schedule my next, unexpected biopsy.

Sometimes we become so very used to a particular behavior that it becomes second nature. This is true of a wide variety of both adaptive and maladaptive behaviors…eating healthy, working out, drinking enough water, smoking, working too much, gossiping, shutting people out, making excuses for other people. Actions are so powerful that, when repeated over time, they simply become part of who we are. And after 30 years of cancer survivorship, eleven surgeries, more than eleven procedures, sixteen different types of biopsies, and twenty-one MRIs, I am no different in that regard. Long ago I became so accustomed to reassuring other people that I would fine, that it is literally reflexive. My arguably canned response is always “I know it will be OK.”

However, this is a little more complex than merely trying to placate others with a submissive, disingenuous statement. Though I must admit I am more prone to doing so when really busy and lacking the bandwidth to really comfort other people. But there is something more than just mere habit and convenience at play. For starters, I really do believe that God and the universe (and perhaps a pinch of karma) will ensure that things will work out fine, one way or another. While faith, like anything, may wax and wane at times, it is always there anchoring the journey.

Furthermore, as I have written before, I really do believe survivorship is a “good problem to have.” I try to not lose sight of those who are no longer among us, but who would have given anything to have this type of “problem.” I have also had decades of hearing the phrase “it is probably nothing…but because of your history, we should biopsy… just to be sure.” In fact, during the otherwise seemingly endless days awaiting pathology results, it is not unheard of for me to temporarily forget that I am waiting for that call. Additionally, I recognize how fortunate I am to have insurance and access to great care, and appreciate that I have been blessed with doctors who do their due diligence to ensure that I remain cancer-free. Thus while it may not be ideal to have yet another biopsy, the benefit of those needles and sterile surgical steel is that it is what ensures I remain here…for my kids…for my patients…for anyone else whose life I might have the opportunity to touch…and to continue to share my musings on surviving cancer (and so much more). So bring on the betadine and lidocaine. God-willing, it will all be OK.  

*** Photo credit: @auskr (IG)

Welcome To The Group…

I would like to think it was fitting that I spent the last night of my dear friend’s (all-too-short) life raising money and awareness at a JDRF fundraiser, for it was diabetes that first bonded us. Unfortunately, we were bonded by another illness, cancer. And it was that illness which caused her to breathe her last breath a handful of hours after I returned from said fundraiser. It was shortly after I emerged groggily from my bed, having perhaps overestimated my ability to stay up so late (and having slightly underestimated the appropriate food to cocktail ratio the night prior), that I learned of her passing. She had been on hospice a few short weeks, and I admit that each day I wondered if this would be the day that the world would lose an amazing woman, mother, physician, and friend.

I admit that my friend and I had what you might call an unusual friendship. It was non-traditional in the sense that our entire friendship occurred through the mediums of text, phone calls, social media, and messenger. Yes, that means we have never met in person. We live in entirely different states, 1300 miles away from one another. Yet, we led eerily similar lives, which united us in ways that likely no two people would ever hope to be aligned.

I first “met” her the day after my youngest child was diagnosed with type 1 diabetes. He had just been admitted to the hospital, and I posted in a private physicians group about what it was like to watch my then 20-month-old son get his first insulin injection. She reached out to me, and the next thing I knew we were chatting away on the phone as she helped me navigate my first few days and weeks as a MOD (mother of a diabetic). Her own son had been diagnosed many months prior, and she already had some experience under her belt with navigating medical devices, carb counting, and the other details of the day-to-day care of a diabetic toddler. She understood what it felt like to be a mother, and a pediatrician, dealing with this disease, and her advice and support were invaluable to me. As I traversed the path from a pediatrician ordering all the shots, to a mom giving the shots, she was the one that shepherded me along the way.

Quite ironically, we had both been pediatric hospitalists (pediatricians who care for patients admitted to the hospital). I had transitioned to outpatient (working solely in the clinic) about 3 years prior to my son’s diagnosis. Shortly after we became friends, she considered and ultimately made a similar transition to outpatient medicine. Sadly, her tenure in the outpatient world would be way too short.

We both had three children, including an older daughter (hers a few years younger than my own) and two younger boys (hers are twins, mine are 5 years apart). Our type 1 diabetic boys even looked a bit like one another, and we kept saying how we needed to get the boys together. My heart aches when I consider that this particular play date never occurred.

As a person who values physical presence and touch, it might seem odd to feel so close to someone whom I have never hugged, other than in a virtual fashion. But sometimes empathy forges powerful connections that transcend physical distance. Something within me recognized and connected with something…many things… within her. And because of that recognition, my life was touched by having her in it. Likewise, because of that same connection, I now feel the void left behind by her absence.

Having been first diagnosed with cancer at an early age, I have had many occasions in which to experience survivor guilt. Most would say it is a good problem to have. And it is. I am grateful to be a survivor. But survivor guilt is a very real thing and in no way diminishes the gratitude of the survivor. And today that survivor guilt weighs more heavily than in the past. It is not merely because she and I both had a similar type of cancer (hers clearly worse than my own), though I have contemplated that particular unfairness on more days than I can count since she was diagnosed. It has less to do with our uncanny similarities, and much more to do with the fact that I know how incredibly heartbreaking it had to be to leave behind three young children, including one with a medical illness of his own. It is the pain of knowing that your babies need you, and that you will not be able to be there.  While I am sure she took some solace in knowing that her children will be loved, nurtured, and cared for, that knowledge cannot erase the reality she faced in these past few weeks. While I am grateful that her suffering has ended, I wish God and the universe had granted her more time with her children (and, selfishly, with the rest of us as well).

However, despite all that cancer has robbed us of with her passing, she managed to touch so many people in such a short time. And those memories will hopefully ease the ache that we now feel without her presence, physical or virtual. One of my first memories of her was during our first conversation, as I stood in my son’s hospital room with tears in my eyes. At the time she jokingly welcomed me to the “group that no one wanted to be a part of.” It broke my heart a year later when I welcomed her to the other “group that no one wanted to be a part of” after she was diagnosed with cancer.  My sincere hope is that her children will know there was one more “group” to which she belonged as well. A “group” that defined her more than her identity as a pediatrician, mother of a diabetic, or even a woman with cancer. It is the “group” of women who support, empower, and touch the lives of others.

Rest in peace, my beautiful friend. Your time here may be done, but your work continues.